SMA Newsroom

<span style="color: rgba(0, 0, 0, 0.87); font-family: Nunito, webfontregular, -apple-system, 'Segoe UI', Roboto, Helvetica, Arial, sans-serif, 'Apple Color Emoji', 'Segoe UI Emoji', system-ui; font-size: 16px; background-color: #ffffff;">Today, on Rare Disease Day 2024, we are very excited to launch: "Care for adults living with SMA in Europe: a benchmarking report."<br style="background-repeat: no-repeat; box-sizing: border-box; padding: 0px; margin: 0px; --tw-border-opacity: 1; --tw-shadow: 0 0 #0000; --tw-ring-inset: var(--tw-empty, ); --tw-ring-offset-width: 0px; --tw-ring-offset-color: #fff; --tw-ring-color: rgba(59, 130, 246, .5); --tw-ring-offset-shadow: 0 0 #0000; --tw-ring-shadow: 0 0 #0000; color: rgba(0, 0, 0, 0.87); font-family: Nunito, webfontregular, -apple-system, 'Segoe UI', Roboto, Helvetica, Arial, sans-serif, 'Apple Color Emoji', 'Segoe UI Emoji', system-ui; font-size: 16px; background-color: #ffffff; border: 0px solid rgba(237,242,247,var(--tw-border-opacity));" /><br style="background-repeat: no-repeat; box-sizing: border-box; padding: 0px; margin: 0px; --tw-border-opacity: 1; --tw-shadow: 0 0 #0000; --tw-ring-inset: var(--tw-empty, ); --tw-ring-offset-width: 0px; --tw-ring-offset-color: #fff; --tw-ring-color: rgba(59, 130, 246, .5); --tw-ring-offset-shadow: 0 0 #0000; --tw-ring-shadow: 0 0 #0000; color: rgba(0, 0, 0, 0.87); font-family: Nunito, webfontregular, -apple-system, 'Segoe UI', Roboto, Helvetica, Arial, sans-serif, 'Apple Color Emoji', 'Segoe UI Emoji', system-ui; font-size: 16px; background-color: #ffffff; border: 0px solid rgba(237,242,247,var(--tw-border-opacity));" />

Today we launch "Care for adults living with SMA in Europe: a benchmarking report!

Season's greetings 2023

We want to share with you our Season's Greetings for 2023! This was an exciting year with so much happening! So many people joining our projects and initiatives, and so much support and love we receive daily from all our SMA Community!

Season's Greetings 2023!

Start your survey here

EUPESMA Series

EUPESMA flyer

EUPESMA flyer English

The Pan-European Survey on SMA and Clinical Trials is live! What would you like to see in future clinical trials for SMA?&nbsp; Help us advocate for clinical trials that meet the needs of people living with SMA!&nbsp; <br style="background-repeat: no-repeat; box-sizing: border-box; padding: 0px; margin: 0px; --tw-border-opacity: 1; --tw-shadow: 0 0 #0000; --tw-ring-offset-width: 0px; --tw-ring-offset-color: #fff; --tw-ring-color: rgba(59,130,246,.5); --tw-ring-offset-shadow: 0 0 #0000; --tw-ring-shadow: 0 0 #0000; color: rgba(0, 0, 0, 0.87); font-family: webfontregular, -apple-system, 'Segoe UI', Roboto, Helvetica, Arial, sans-serif, 'Apple Color Emoji', 'Segoe UI Emoji', system-ui; font-size: 16px; background-color: #ffffff; border: 0px solid rgba(237,242,247,var(--tw-border-opacity));" />

EUPESMA 2023 Survey is now rolling!

End of Year 2023 Roche's Community Letter

End of Year 2023: Roche's Community Letter

We are pleased to share with you the latest Community Update from Roche.&nbsp;

SMA Newsroom

Today we launch "Care for adults living with SMA in Europe: a benchmarking report!

Season's Greetings 2023!

EUPESMA 2023 Survey is now rolling!

End of Year 2023: Roche's Community Update

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