SMA Newsroom

Community letter from Roche. June 2024.

Community Letter: Roche, FIREFISH 5 year

We are happy to share the latest Community Letter issued by Roche, after the Cure SMA Conference.

Community update from Roche

Real-life Stories on OdySMA

<span style="color: rgba(0, 0, 0, 0.87); font-family: Nunito, webfontregular, -apple-system, 'Segoe UI', Roboto, Helvetica, Arial, sans-serif, 'Apple Color Emoji', 'Segoe UI Emoji', system-ui; font-size: 16px; background-color: #ffffff;">While stabilising treatment for SMA is available, European-wide access is not.&nbsp;<br style="background-repeat: no-repeat; box-sizing: border-box; padding: 0px; margin: 0px; --tw-border-opacity: 1; --tw-shadow: 0 0 #0000; --tw-ring-inset: var(--tw-empty, ); --tw-ring-offset-width: 0px; --tw-ring-offset-color: #fff; --tw-ring-color: rgba(59, 130, 246, .5); --tw-ring-offset-shadow: 0 0 #0000; --tw-ring-shadow: 0 0 #0000; color: rgba(0, 0, 0, 0.87); font-family: Nunito, webfontregular, -apple-system, 'Segoe UI', Roboto, Helvetica, Arial, sans-serif, 'Apple Color Emoji', 'Segoe UI Emoji', system-ui; font-size: 16px; background-color: #ffffff; border: 0px solid rgba(237,242,247,var(--tw-border-opacity));" /><br style="background-repeat: no-repeat; box-sizing: border-box; padding: 0px; margin: 0px; --tw-border-opacity: 1; --tw-shadow: 0 0 #0000; --tw-ring-inset: var(--tw-empty, ); --tw-ring-offset-width: 0px; --tw-ring-offset-color: #fff; --tw-ring-color: rgba(59, 130, 246, .5); --tw-ring-offset-shadow: 0 0 #0000; --tw-ring-shadow: 0 0 #0000; color: rgba(0, 0, 0, 0.87); font-family: Nunito, webfontregular, -apple-system, 'Segoe UI', Roboto, Helvetica, Arial, sans-serif, 'Apple Color Emoji', 'Segoe UI Emoji', system-ui; font-size: 16px; background-color: #ffffff; border: 0px solid rgba(237,242,247,var(--tw-border-opacity));" /><span style="color: rgba(0, 0, 0, 0.87); font-family: Nunito, webfontregular, -apple-system, 'Segoe UI', Roboto, Helvetica, Arial, sans-serif, 'Apple Color Emoji', 'Segoe UI Emoji', system-ui; font-size: 16px; background-color: #ffffff;">Meet Jana, Julia and Nataliia to understand how access to treatment and care, can impact the lives of people living with SMA!

New Real-life Stories on OdySMA! 

Full publication

We are delighted to invite you to read the latest Digital Spotlight on Spinal Muscular Atrophy by Rare Revolution Magazine.&nbsp;

New publication: Spinal Muscular Atrophy. Digital Spotlight by Rare Revolution Magazine.

Full interview

We are very happy to share with you the latest interview with&nbsp;Bianca &Ouml;zcan on Spinal Muscular Atrophy and 4th Scientific International Congress in Ghent, published in Futuremedia News.

SMA Newsroom

Community update from Roche

New Real-life Stories on OdySMA!

New publication: Spinal Muscular Atrophy. Digital Spotlight by Rare Revolution Magazine.

Interview with Bianca Ozcan on Spinal Muscular Atrophy and 4th Scientific International Congress in Ghent

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