ResearchApr 4, 2023
SMA Parent Well-being Survey

How does caring for a child with SMA impact the lives of their parents? What influences the parents’ well-being, both in a positive and negative way?
How does caring for a child with SMA impact the lives of their parents? What influences the parents’ well-being, both in a positive and negative way?
Have you ever wondered how the accessibility of your environment, your treatment status, or your sleep quality impact the way you are feeling? Why are some days easier than others? Why are some moments of the day or week more challenging?