SMA Newsroom

ResearchFeb 27, 2025

Call for Research no. 12. Learn about the shortlisted projects!

We are proud to announce the five scientific projects that have been selected for funding through our Call for Research no. 12.

 

TreatmentsDec 20, 2024

Community Update Biohaven: RESILIENT Letter to SMA Community

Biohaven released the results from their RESILIENT SMA clinical trial, and they did not meet the primary endpoint. Biohaven is currently analysing the data further and is engaging in discussion with Health Authorities. 

TreatmentsDec 20, 2024

Community Update Roche: End of Year Community Letter

We are pleased to share the latest Community Letter issued by Roche, providing an update on their ongoing efforts in Spinal Muscular Atrophy (SMA) in 2024. The letter includes the latest developments on risdiplam and Roche’s SMA clinical development program.

AdvocacyOdySMADec 18, 2024

SMA News Today latest article: "SMA Europe inviting patients to talk of how treatment has changed life."

We're excited to announce that SMA News Today has featured our OdySMA real-life stories initiative, as part of their latest publication!