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EUPESMA Series

EUPESMA flyer

EUPESMA flyer English

The Pan-European Survey on SMA and Clinical Trials is live! What would you like to see in future clinical trials for SMA?&nbsp; Help us advocate for clinical trials that meet the needs of people living with SMA!&nbsp; <br style="background-repeat: no-repeat; box-sizing: border-box; padding: 0px; margin: 0px; --tw-border-opacity: 1; --tw-shadow: 0 0 #0000; --tw-ring-offset-width: 0px; --tw-ring-offset-color: #fff; --tw-ring-color: rgba(59,130,246,.5); --tw-ring-offset-shadow: 0 0 #0000; --tw-ring-shadow: 0 0 #0000; color: rgba(0, 0, 0, 0.87); font-family: webfontregular, -apple-system, 'Segoe UI', Roboto, Helvetica, Arial, sans-serif, 'Apple Color Emoji', 'Segoe UI Emoji', system-ui; font-size: 16px; background-color: #ffffff; border: 0px solid rgba(237,242,247,var(--tw-border-opacity));" />

EUPESMA 2023 Survey is now rolling!

End of Year 2023 Roche's Community Letter

End of Year 2023: Roche's Community Letter

We are pleased to share with you the latest Community Update from Roche.&nbsp;

End of Year 2023: Roche's Community Update

Full article

"I am Unique": Rarity Life Magazine article on the 2023 Awareness Campaign

We are delighted to share with all of you the latest article about our 2023 Awareness Campaign: "I am Unique".

New article: "I am Unique"

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