Resources

Policy on Animal Research 6b403c21b5.pdf

Animal research policy

SMA Europe is dedicated to improving the lives of people living with SMA and improve outcomes through high quality research to better understand and treat this condition.

Audit-report-2020-englisch.pdf

Audit report 2020

SMA-Europe e.V., Freiburg im Breisgau,&nbsp;Auditor's Report on the Fiscal Year 2020

Gewinnermittlg2020-2.pdf

Gewinnermittlg 2020

EINNAHMEN-AUSGABEN-&Uuml;BERSCHUSSRECHNUNG vom 01.01.2020 bis 31.12.2020

SMA Europe Membership Application Form.docx

Membership Application Form

SMA_Annual_Report_2024_Full_5bdaf12189.pdf

SMA Europe Annual Report 2024

SMA Europe Annual report 2025.pdf

SMA Europe Annual Report 2025

SMA Europe Annual Report 2026

SMA_Europe_Code_of_Practice_on_Relationships_with_the_Pharmaceutical_Industry_Apr_16_5e8d881079.pdf

SMA Europe Code of Practice on Relationships with the Pharmaceutical Industry

This Code of Good Practice is designed to guide relations between SMA Europe and the pharmaceutical industry (including their representatives and consultants)

SMAEurope_Symposium25_Abstract info_May25.pdf

SMA Europe Symposium 2025 Abstract Requirements

SMA_Europe_Tax_Exemption_Notice_2015-2017.pdf

SMA Europe Tax Exemption Notice 2015-2017

SMA_Europe_Tax_Exemption_Notice_2018.pdf

SMA Europe Tax Exemption Notice 2018

SMA_Europe_Tax_Exemption_Notice_2022.pdf

SMA Europe Tax Exemption Notice 2022

SMA_Europe_Tax_Exemption_Notice_2023.pdf

SMA Europe Tax Exemption Notice 2023

SMA_Europe_Tax_Exemption_Notice_2024.pdf

SMA Europe Tax Exemption Notice 2024

SMA Europe official documents & reports 

Biogen-Patient-Brochures_Navigating-health-information-and-services-_2021-05-27_FINAL.pdf

Navigating health information and services

When it comes to your health, playing an active role in decision making can bring many benefits.

Living with SMA: guides & resources

ABN_Neurology_COVID-19_Guidance_22.3.20.pdf

ABN Neurology COVID-19 Guidance

The ABN recognises that this is a rapidly changing field. We will update our advice as we learn more.

Publications 

SMA Europe - Community Update Ukraine.pdf

Biogen community statement on Ukraine support

We want to provide an update on Biogen&rsquo;s work to support Ukrainian refugees, including those living with SMA.

Biogen SMA BIIB115 PAG Community Statement_July 2025-For SMA Europe.pdf

Community update Biogen: salanersen (BIIB115) Study

Novartis-Acquisition_Community-Statement_15May2018.pdf

Community update – Novartis acquires AveXis

Following the announcement last month, we wanted to let you know that AveXis (the gene therapy company developing a new approach to treat SMA known as AVXS‐101) is officially a Novartis company.

FINAL-Roche-COVID-Response-Measures-Community-Letter-SMA-Europe.pdf

Roche COVID Response Measures Community Letter SMA Europe

Over the last few weeks, Roche, alongside our partners, has been monitoring the COVID-19 global pandemic to better understand the impact on the SMA community. We are living through an unprecedented time in our societal history and we recognize that people living with or caring for those with SMA might be facing a higher level of uncertainty and anxiety.

Community Letters & Updates

AFM TELETHON SMAdvocacy Event_.pdf

AFM Téléthon, France

CSMA Ukraine Template_SMAdvocacy Event_Organization name _ VM.pdf

CSMA Ukraine

Comms guidelines_Media partners Prague 2027.pdf

Communication-related inquiries

Cure SMA Bangladesh.pdf

Cure SMA Bangladesh

EAMDA.pdf

EAMDA

FSMA Iceland_Webpage SMAdvocacy Event.pdf

FSMA Iceland

FundAME webpage.pdf

FundAME, Spain

Fundacja SMA_Global SMAdvocacy Event.pdf

Fundacja SMA, Poland

Indonesian SMA community_Webpage SMAdvocacy.pdf

Indonesian SMA Community

InitiativeSMA_Webpage SMAdvocacy Event.pdf

Initiative SMA, Germany

Transcription of María's interview.pdf

Maria's Interview Text

SMA Asia_Webpage SMAdvocacy Event.pdf

SMA Asia

SMA Azerbaijan_Webpage SMAdvocacy Event.pdf

SMA Azerbaijan

SMA Hellas_Webpage SMAdvocacy Event.pdf

SMA Hellas, Greece

SMA Ireland_for Ghent SMAdvocacy Event (1).pdf

SMA Ireland

SMA North Macedonia_Webpage SMAdvocacy.pdf

SMA North Macedonia

SMA Slovakia Webpage SMAdvocacy Event.pdf

SMA Slovakia

SMA Tunisia_Webpage Template_SMAdvocacy Event.pdf

SMA Tunisia

SMA UK_Webpage SMAdvocacy Event.pdf

SMA UK

NL SMA org_Webpage SMAdvocacy .pdf

Vereniging Spierziekten Nederland, Netherlands 

Vietnamese Organization for Rare Diseases-VORD_Webpage SMAdvocacy Event_.pdf

Vietnamese Organization for Rare Diseases, Vietnam 

WeCareJourney Association_SMAdvocacy Event_.pdf

WeCareJourney Malaysia

Communication & Marketing Resources

Freelance Ad_SMAcademy_2024_final.pdf

Freelance Opportunity in Community Education

Freelance Ad_NBS_CT Guide_2024_final.pdf

Freelance Opportunity: Newborn Screening and Clinical Trial Readiness

Job_Ad_Research and Medical Manager_2024_final.pdf

Job Ad Research and Medical Manager

SMA Care Symposium25_Programme_short.pdf

Symposium25_Programme_June25_final

Other resources and updates

Resources

SMA Europe official documents & reports (14)

Living with SMA: guides & resources (1)

Publications (1)

Community Letters & Updates (4)

Communication & Marketing Resources (22)

Other resources and updates (4)

Categories

SMA Europe official documents & reports (14)

Living with SMA: guides & resources (1)SizeFormatUpdated

Living with SMA: guides & resources (1)

Publications (1)SizeFormatUpdated

Publications (1)

Community Letters & Updates (4)SizeFormatUpdated

Community Letters & Updates (4)

Communication & Marketing Resources (22)SizeFormatUpdated

Communication & Marketing Resources (22)

Other resources and updates (4)SizeFormatUpdated

Other resources and updates (4)

Categories