Resources

TAMAÑO A0_ 221006_SMA Europe poster congress OdySMA_2022_final_A0.pdf

OdySMA - SMA Europe Advocacy Tool. Scientific Poster. 3rd Scientific Congress on SMA. Barcelona 2022.

230530_SMA Europe poster CureSMA congress OdySMA_2023_ng_lg.pdf

OdySMA 2023. Scientific Poster. Cure SMA Conference. Orlando 2023.

2026_ECRD_Poster_DIGITAL_14MAY.pdf.pdf

Patients in the lead: embedding patient-led processes across advocacy domains at SMA Europe

Scientific Posters by SMA Europe

Leaflet Global SMAdvocacy Event 2026.pdf

Global SMAdvocacy Event 2026 Guide

Final_Application Form_SMA Patient Advocate Training.pdf

Patient Advocate Training

SMA Europe Annual Report 2024.pdf

SMA Europe Annual Report 2023

Info Sheet - SMA Patient Advocate Training_28-Apr26 2.pdf

SMA Patient Advocate Training Info Sheet

SMA Europe official documents & reports 

s13023-026-04588-9_reference.pdf

From questions to impact in spinal muscular atrophy - identifying community-driven research priorities through a multi-stakeholder European initiative

The diagnosis communication process in SMA_paper.pdf

The diagnosis communication process in spinal muscular atrophy: A cross-cutting view of the new challenges facing the therapeutic era.

Tracker of Policy and Access Environment for SMA Patients-final (1).pdf

Tracker of Policy and Access Environment for SMA Patients

Assessing the policy and access environment accross European counties for SMA patients

Publications 

Call to Action on JCA.pdf

Call to action on the implementation of the EU Joint Clinical Assessment for ATMPS

FINAL_SMA_Europe_Statement-Ukraine_Response_Measures_Roche_09032022.pdf

Roche: Ukraine Response Measures

Roche statement - Maintaining risdiplam supply in Ukraine and Russia

SMA-Europe-Community-Letter-20201-MDA-Conference.pdf

SMA Europe Community Letter 2021 MDA Conference

As per your request to receive regular updates about the risdiplam clinical development program, we are pleased to share with you new 2-year longer-term data from part 2 of the SUNFISH clinical trial.

Community Letters & Updates

I am unique_Rarity Life Magazine_December 2023.pdf

"I am Unique": Rarity Life Magazine article on the 2023 Awareness Campaign

Rarity Life The Power of Collaboration Article.pdf

"The power of collaboration." Rarity Life Magazine

#WeAreOne Dossier Campaign.pdf

#WeAreOne Dossier Awareness Campaign

Designing communication initiatives based on community needs - SMA Europe - Layout PDF.pdf

Designing communication initiatives based oncommunity needs – the Comms WorkingGroup at SMA Europe

SMA Austria_Global SMAdvocacy Event.pdf

SMA Austria

Treat NMD SMA Masterclass.pdf

Treat-NMD SMA Masterclass

5 Neurologists from sites in Belgium, Portugal, Romania and Ukraine were selected to participate in Treat-NMD&rsquo;s SMA Masterclass and benefit from an SMA Europe travel bursary.

Unicef-press-release-20-Nov-19.pdf

Unicef press release

Jane Velkovski, 11-year-old disability advocate to speak at the United Nations in New York

Communication & Marketing Resources

Resources

Scientific Posters by SMA Europe (3)

SMA Europe official documents & reports (4)

Publications (3)

Community Letters & Updates (3)

Communication & Marketing Resources (7)

Categories

Scientific Posters by SMA Europe (3)

SMA Europe official documents & reports (4)SizeFormatUpdated

SMA Europe official documents & reports (4)

Publications (3)SizeFormatUpdated

Publications (3)

Community Letters & Updates (3)SizeFormatUpdated

Community Letters & Updates (3)

Communication & Marketing Resources (7)SizeFormatUpdated

Communication & Marketing Resources (7)

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